Update
07 October 2008Posted by Mother Faerie @ Tuesday, October 07, 2008 Well I have not updated this page in a long time. There has been many crazy things that have been going on and life has become hectic and consumed with dr appts. Hana was hospitalized for about a week due to unsafe behaviors. It was scary and they messed with her medication. Once she was released, her regular Dr put her back onto the namenda and clonidine and took her off the zoloft that I think set her off :(
While she was in the hospital she came back with bad blood results. She has neutropenia, which is low white blood cells. Basically, she doesn't have much to fight off an infection. We have to watch for infection and fever.
She saw the oncologist and hematologist last week. We did lots of repeat blood work. She sees the rheumatologist next week. Preliminary tests show she's testing positive for Lupus, which is an autoimmune disorder that the body's immune system is confused and attacks itself instead of what's invading it.
So that's it for now. Lots of waiting...